Our Team Story
We are working together to raise awareness about lupus, a disease that affects over 9,000 people in Western New York. Please show your support!
Good morning - September 10th is the Lupus walk. Here's the link to donate or sign up to walk and help me raise money for awareness of lupus. Although I live in pain everyday I truly try not to show it. Many are much worse than I am so I feel I'm lucky and try not to complain. Please get the word out about the walk help me raise money and awareness. I truly appreciate it. Thank you Jennifer
** Sign up to walk, donate or Both. 😄 #support #love #Donate #2017Lupuswalk #grateful
💞 LUPUS TEAM NAME : JENNS TROOPERS
PS - Below is my Inspirational poetry FB Page (Jennifer's Poetry) Please like and share :-)
Thank you - God Bless - Have a Great day!
Jenn Sinatra Mac Neil
INFORMATION SECTION:
- To better understand Lupus –The Spoon theory: http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf
- Lupus information visit http://www.lupus.org/index.php/answers/entry/explaining-lupus Feel free to contact me directly to discuss as well. I look forward to hearing from you. (716) 983-0870
"How do I explain lupus to others?"
Perhaps a good way to start to explain lupus is to make clear what lupus is not.
- Lupus is not contagious. You cannot "catch" lupus from someone or "give" lupus to someone.
- Lupus is not like or related to cancer. Cancer is a condition of malignant, abnormal tissues that grow rapidly and spread into surrounding tissues.
- Lupus is not like or related to HIV (Human Immune Deficiency Virus) or AIDS (Acquired Immune Deficiency Syndrome). In HIV or AIDS, the immune system is under-active; in Lupus, the immune system is overactive and attacks itself. It attacks healthy skin, joints, blood and organs for absolutely no reason what so ever.
Now what is Lupus?
- Lupus is an autoimmune disease. In some ways, lupus represents a kind of allergic reaction by the body, in which the immune system sees the body’s own healthy tissues and cells as foreign.
- Lupus is a chronic disease. This means that anyone who develops lupus will have lupus for the rest of his or her life. As with other chronic illnesses such as diabetes or asthma, there is no cure for lupus yet. However, there are medications and lifestyle adjustments that help most people live active and productive lives in spite of these illnesses.
- Lupus has many different symptoms, and because of that, affects each person differently. Lupus can cause a mild skin rash or achy joints, or can involve the kidneys, heart, lungs, brain, or other internal organs. What most people do not realize, however, is how much effort it may take you to function day-to-day when you have to cope with extreme fatigue, chronic pain, memory loss, medication side effects, etc.
- Lupus is unpredictable: It is a disease of flares (the symptoms worsen and you feel ill) and remissions (the symptoms improve and you feel better). Knowing that lupus is unpredictable may help other people understand your physical and emotional ups and downs as well as the changes that you may have to make to schedules, plans, and commitments.
Thanks for reading
God Blerss!
Jenn's Troopers
Meet Our Team
JENN Sinatra MacNeil
$1,750/$1,750 Raised | 100% Funded
JENN Sinatra MacNeil says:
Hi, I am thrilled to be supporting Lupus Alliance of Upstate New York by helping them fundraise for their campaign: LUPUS WALK 2017 AT Galleria Mall in...
View FundraiserJohnathan P Bieber
$0/$500 Raised | 0% Funded
Johnathan P Bieber says:
I am walking to raise awareness for lupus, a disease that is poorly understood and frequently undiagnosed. My participation will help support those living...
View FundraiserDylan Mac Neil
$354/$500 Raised | 71% Funded
Dylan Mac Neil says:
Many of you might not know that my wife was diagnosed with Lupus when she was 19 years old. She has had many great years and some not so great. There is no...
View FundraiserMichelle Rowe
$40/$500 Raised | 8% Funded
Michelle Rowe says:
I am walking to raise awareness for lupus, a disease that is poorly understood and frequently undiagnosed. My participation will help support those living...
View FundraiserTina Dickens
$40/$500 Raised | 8% Funded
Tina Dickens says:
I am walking to raise awareness for lupus, a disease that is poorly understood and frequently undiagnosed. My participation will help support patients and...
View FundraiserDoug Dickens
$20/$500 Raised | 4% Funded
Doug Dickens says:
I am walking to raise awareness for lupus, a disease that is poorly understood and frequently undiagnosed. My participation will help support patients and...
View FundraiserAudrey MacNeil
$470/$500 Raised | 94% Funded
Audrey MacNeil says:
I am walking for my daughter in law who has Lupus. This disease is poorly understood and frequently undiagnosed. My participation will help support those...
View FundraiserErricka Willard
$20/$500 Raised | 4% Funded
Erricka Willard says:
I am walking to raise awareness for lupus, a disease that is poorly understood and frequently undiagnosed. My participation will help support those living...
View FundraiserJamal ONeill
$0/$500 Raised | 0% Funded
Jamal ONeill says:
I am walking to raise awareness for lupus, a disease that is poorly understood and frequently undiagnosed. My participation will help support those living...
View FundraiserLaura Lysarz
$125/$500 Raised | 25% Funded
Laura Lysarz says:
I am walking to raise awareness for lupus, a disease that is poorly understood and frequently undiagnosed. My participation will help support those living...
View Fundraiser