Jacob's Journey's Fundraiser
Walk 'n' Wheel for LGS Research
54%
funded
$270
raised
$500
goal
6
donors
6
days left
Jacob's Journey
Hello, I am Jacob. I have a rare, genetic seizure disorder called LGS. LGS gives me superpowers that allow me to live each day unlike anyone else I know. Since I am so special it is sometimes hard for others to understand what my world looks like each day, so I am trying to raise money to help spread the word about my superpower and help with future research. I love getting to meet new friends while sharing my experience. Letting others know how they can help and that having this condition shouldn’t make you scared of me, it just makes me unique.
About this Campaign
Jacob's Journey
Earn exclusive prizes at $350, $700, and $1,500 raised on your personal fundraising page!!
Join us as we Step Together for a Breakthrough!
In 2025, the LGS Foundation is making significant strides in research by bringing together leading experts to create formal recommendations for a standard of care for Lennox-Gastaut Syndrome (LGS). This consensus opinion project aims to improve treatment and provide a clear pathway for patients, while also advancing LGS research.
The LGS Foundation’s annual Walk ‘n’ Wheel event, which raises awareness and supports the “Finding the Cures, Together” Research Program, is more critical than ever. With over a million people affected by LGS worldwide, the Foundation is rallying the community to drive progress and step closer to a breakthrough in treatments.
All rights reserved.