WHERE THE MONEY IS GOING
All donations are tax deductible and go to KIF1A.ORG, a patient-led nonprofit 501c3 (Tax ID: 82-0714729) that supports KIF1A research at the Chung Laboratory at Columbia University Medical Center. 100% of the funds benefit this vital research needed to find treatment for children living with KIF1A.
WHAT IS KIF1A
KIF1A Disorder is a very rare and degenerative neurological disease affecting children born with a mutation in the KIF1A gene. Researchers and physicians at Columbia University Medical Center are relentlessly working to discover treatment for every child living with KIF1A. We have an urgent need to accelerate this research, and your donation today drives us closer to a cure.
Fewer than 100 children throughout the world are reported to have KIF1A. There is no cure or treatment. Yet.
With your support, we will continue to fund intense clinical research to discover a cure for every child living with KIF1A. Waiting is not an option for KIF1A kids, we need your help today.
Mutations in KIF1A cause the following disorders:
• Cognitive impairment
• Cerebellar atrophy
• Ataxia
• Spastic paraplegia
• Optic nerve atrophy
• Peripheral neuropathy
• Epilepsy
OUR STORY: KIF1A.ORG, INC.
In August 2016, Luke Rosen and Sally Jackson's two-year old daughter, Susannah, was diagnosed with a rare, neurological disease called KIF1A Disorder. When doctors told them no cure or treatment exists for this progressive disorder, Luke and Sally had to act fast. KIF1A.ORG began in October 2016 and works relentlessly to discover treatment for children diagnosed with KIF1A Disorder.
KIF1A.ORG's mission is to locate other patients and urgently raise money to fund research leading to treatment for KIF1A Kids. Gene therapy and drug development are within reach, but there are two things preventing us from finding that cure: time and money.
There is no time to wait, we need to find treatment today. With your support we can make that happen.
Thank You Monthly Donors!
April 9, 2018
Thank you to our monthly recurring donors. Contributing monthly makes a big difference, and so do you!
A Rare Disease Day Video For You!
February 28, 2018
KIF1A families thank you for your support in driving us closer to treatment every single day.
Ride Our Carousel for Free (Price of Admission: A share)
January 28, 2018
First off, our supporters rock. Thanks for a solid January of fundraising, we were able to contribute $10,000 to our research initiative from January's generous donations!
February fundraising is off to a great start. Part of that great start is because of the Carousel of Possible Dreams. To take part, you can be a carousel rider and share the KIF1A story across social media to reach our goal. No financial obligation, you've already given a lot, but you can help us drive to our February 28th goal of $25,000 in February! Join us, it's easy, click here and make it happen! Ride the KIF1A Carousel Today!
Carousel of Dreams
December 23, 2017
#TeamJabriel
December 12, 2017
The Owera's continue to bring awareness and raise vital funds for KIF1A research!
Embrace Day!
December 12, 2017
#TeamSadie Rocking an incredible event! Wonderful awareness, with great fundraising and creative spirit.
https://abc10up.com/2017/11/30/taking-walk-someone-elses-genes/
Thank You for #GivingTuesday!
December 12, 2017
Thank you all for an amazing Giving Tuesday! Here is the link complete with messages from all who supported with a two nickels, a dime, a dollar and all the high fives in the world. You make a difference. 
Thank You for #GivingTuesday!
December 12, 2017
EEG Playdate!
November 21, 2017
KIF1A Kids stick together...
Happy Birthday Super Lexi!
November 21, 2017
Go Tem Parker!!!!!!
November 21, 2017
Great Fundraiser!!!
Turner Thanks You!
November 5, 2017
Did you know Dr. Chung’s Lab is working on a Natural History Study of KIF1A patients? These lengthy and detailed studies are crucial for researchers to understand rare diseases in our quest for treatment. Turner is thankful for the scientists at Chung Lab and people like you who support our efforts! #KIF1AKids #ThankYOU #CureKIF1A
November Thanks You!
November 4, 2017
Thanks to Kathryn and #TeamParker for designing our November Thank You messages! If you make a small monthly donation, soon you will have a whole collage of KIF1A Kids saying "Thank You!"
Thank you to our supporters for helping us discover treatment for every child living with KIF1A.
Bake and Craft Sale!
October 29, 2017
Thank you Van Pelt and Opie Library Staff! GREAT fundraiser! You mean the world to all the KIF1A families!
Superhero of the Week
October 4, 2017
This week's KIF1A Superhero is... EDWARD!
Thanks for the support team, lets drive through and hit $90,000 during Edwards week!
http://www.kif1a.org/edward.html
Super Caitlin!
September 19, 2017
Superheroes of the Week... Eleonora and Florence!
September 8, 2017
http://www.kif1a.org/eleanor---florence.html
DQ Fundraiser
September 2, 2017
KIF1A in the News
September 2, 2017
Lets Power Into Fall: Re Search
September 1, 2017
Two words:
Re Search.
Ok, that's one word. But lets get our research funding going strong heading into the school year. Thanks for the support team, keep on going! 
Parker!
August 27, 2017
Last week somebody very wise told me "We all have mountains in front of us, the question is who is brave enough to climb to the summit?" KIF1A Kids are.
Parker made it .25 miles at Lake Springfield Park and Boathouse this morning. First time we have gone this far! And then he walked the whole way back! #TeamParker #KIf1aKid #Win
$40 Every Week. Who's Ready?
August 26, 2017
We have 48 strong families in our group.
If each family raises $40 every week for one year, we can raise $100,000 in one year.
If each family found 4 friends to donate $10 every week for one year, we can raise $100,000 in one year.
$160 every month is a lot to ask, but lets join forces and fund KIF1A research.
Who's ready to commit?
Finish August Strong
August 26, 2017
Thank you supporters! Lets finish August strong and reach our goal!
Superhero of the Week... BRECK!
August 18, 2017
Hello incredible supporters! This week's Superhero is Super Breck!
KIF1A Day!!!!
August 6, 2017
What an amazing day. Thanks to all our incredible supporters for a great KIF1A Day!
Superhero of the Week!
August 2, 2017
Drumroll please..... This week's KIF1A Superhero is Eleonora! All the way from Sweden, our amazing KIF1A family sends you a big high five. http://www.kif1a.org/eleonora.html
Saturday Special!
July 29, 2017
Donate $20 before midnight tonight and we'll name a drink after you on KIF1A Day!
Hug a Superhero
July 28, 2017
Have a great weekend, Superheroes! Thanks for the support - it was a great week.
Another Great Week!
July 24, 2017
More progress this week! Keep ip the great work.
Go team.
Use the force!
July 6, 2017
Some great awareness being spread by KIF1A supporters and families.
Click HERE to read Susannah's story in Lyfestories.
Click HERE to read about Austin and Sadie in the KIF1A Blog.
AND Don't forget to register for KIF1A Day and support our mission to Cure KIF1A!
Keep the force strong, Parker sure does!
KIF1A SUPERHERO OF THE WEEK!
June 30, 2017
Thank You Donors! April-June Donor List: $43,000!
June 22, 2017
Superhero of the Week!
June 22, 2017
Drumroll please... This week's KIF1A Superhero is... Rikki!!!!
The girl rocks, and so does her whole family.
Continued thanks to all the KIF1A supporters. Don't forget about KIF1A Day coming up on Saturday, August 5th! Details here.
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